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National and Statewide Brain Injury & Disability Research & Resources
The following brain injury resources are not listed by county, but are general resources that anyone in California can benefit from. Many of the following resources are professional associations related to brain injury, while others simply have useful information. The reader would benefit by exploring these websites.
American Brain Tumor Association
2720 River Road, Suite 146
Des Plaines, IL 60018
Phone: (800) 886-2282The mission of the American Brain Tumor Association (ABTA) is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. ABTA does this through interactions with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.
American Stroke Association
7272 Greenville Avenue
Dallas, TX 75231http://www.strokeassociation.org/STROKEORG/
The American Stroke Association is dedicated to prevention, diagnosis and treatment to save lives from stroke: America’s No. 4 killer and a leading cause of serious disability. They fund scientific research, help people better understand and avoid stroke, encourage government support, guide healthcare professionals and provide information to enhance the quality of life for stroke survivors.
American Veterans with Brain Injury
4960 Highway 90, Box #173
Pace, FL 32571American Veterans with Brain Injury (AVBI) is an organization that offers support to the families of American service members and Veterans who have sustained brain injuries through a web-based peer support network and information. AVBI provides medical alert dog tags and identity cards in a small carrying case, and AVBI members have access to web-based exercise programs to improve brain health and cognitive performance. These programs encourage self-improvement & recovery of service members & veterans who have sustained a brain injury. There are many other programs and supports for those with brain injury through AVBI.
Aphasia Center of California
200 Grand Avenue
Oakland, CA 94602
Phone: (510) 336-0112Aphasia is a loss of reduction of language (i.e., speaking, understanding, reading, and/or writing) following brain damage, typically as a result of a stroke. The Aphasia Center of California provides high quality treatment programs that enhance communication skills, quality of life, and overall well-being for those affected by aphasia. They offer clients a community of people that support and understand one another, while providing stories of hope and success.
Beach Center on Disability- The University of Kansas
1200 Sunnyside Avenue
Lawrence, KS 66045
Phone: (785) 864-7600The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them.
Brain and Spinal Cord Injury Resource Center
Phone: (877) 216-6020http://www.brainandspinalcord.org/
Sponsored by Newsome Melton LLP, BrainandSpinalCord.org is a resource for brain and spinal cord injury survivors and their families to learn more information about medical conditions, rehabilitation, and legal options.
Brain Injury Association of America (BIAA)
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
Phone: (703) 761-0750The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by traumatic brain injury (TBI). The BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families. It is dedicated to improving the quality of life of people with brain injury and their families as well as promoting prevention of brain injury. The website offers information, education, advocacy, support, and prevention. The BIAA consists of 42 state associations, 200 chapters, and over 800 support groups across the U.S.
Brain Injury Association of California (BIACAL)
2658 Mt. Vernon Avenue.
Bakersfield, CA 93306
Phone: (661) 872-4903The Brain Injury Association of California (BIACAL) is a non-profit membership organization providing information, resources, education, advocacy and support for those affected by brain injury. It is also the country’s oldest and largest nationwide brain injury advocacy organization. Through advocacy, they bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them. For a list of BIACAL’s brain injury resources, please visit http://biacal.org/brain-injury-resources-california.htm.
Brain Injury Coalition
P.O. Box 3497
Chico, CA 95927http://www.braininjurycoalition.info/index_files/Page415.htm
The Brain Injury Coalition is an advocacy and educational organization dedicated to promoting brain injury awareness and creating opportunities for individuals with brain injury, their caregivers, and families.
Brain Injury.com
Phone: (866) 882-7246Brain Injury.com is the largest collection of medical and legal information about brain injury on the web. This website provides a nationwide network of legal services to serve those with cases involving brain injury, and they provide cutting edge information for those in need.
Brain Injury Information NETwork
TBINET was started by a small group of caregivers who had loved ones with various types of brain injuries. TBINET is dedicated to helping people find information on ABI/TBI.
Brain Injury Law Group
212 Whitetail Run Ln.
Sheboygan, Wisconsin 54923
Phone: (800) 992-9447The Brain Injury Law Group is a community of trial lawyers across the U.S. serving the rights of persons with TBI. The web site provides a number to assist survivors of TBI in locating a lawyer specializing in brain injury in the state where they were injured. The website also features articles, information, and graphics about TBI.
Brain Injury Network
707 Hahman Drive, #9276
Santa Rosa, CA 95405
Phone: (707) 544-4323http://www.braininjurynetwork.org/
The Brain Injury Network (BIN) is the first international and USA national advocacy organization operated by people with brain injuries. The Brain Injury Network is a worldwide organization promoting ABI brain injury survivor advocacy, citizen action and brain injury legal rights. BIN provides advocacy, awareness, education, information sharing, networking, peer support, policy, referral, and social community.
Brain Injury News and Information Blog
427 Bedford Road, Suite 260
Pleasantville, NY 10570http://www.braininjury.blogs.com/
The Brain Injury News and Information Blog’s mission is to improve the quality of life for persons with brain injury, their spouses and family members. They believe that the best cure for a brain injury is prevention and they represent clients with compassion to see that justice is done.
Brain Injury Research Center of Mount Sinai
5 East 98th Street, B-15
New York, NY 10029
Phone: (888) 241-5152http://icahn.mssm.edu/research/centers/brain-injury-research-center-of-mount-sinai
The Brain Injury Research Center of Mount Sinai (BIRC-MS) conducts cutting-edge research, with a primary focus on addressing the challenges of living with TBI. In several recent studies, they have evaluated the effectiveness of interventions on the cognitive, emotional and behavioral functioning of people with brain injuries. Their research has greatly expanded the knowledge base with respect to long-term challenges that people with TBI face, as well as approaches to leading better lives after injury.
Brainline
2275 South Quincy Street
Arlington, VA 22206Brainline offers information and resources about preventing, treating, and living with TBI. It serves those whose life has been affected by TBI, including people with brain injury, their families, professionals in the field, and anyone else in a position to help prevent the toll of TBI.
Brain Train
8343 Currant Way
Parker, CO 80134Brain Train provides cognitive retraining software that can be purchased. Volume 1, Basic Cognitive Skills, contains 55 computer programs designed to assist in remediating cognitive and behavioral deficits. Volume 2, Vocational Readiness, consists of 15 programs designed to provide a bridge between cognitive rehabilitation and retraining.
Brain Trauma Foundation
250 Greenwich Street
New York, NY 10007The Brain Trauma Foundation (BTF) dedicated its mission to improving TBI patient outcomes worldwide by developing best practice guidelines, conducting clinical research, and educating medical professionals and consumers.BTF continues to conduct clinical research to provide solutions and raise public awareness and understanding about concussion and TBI. By educating healthcare professionals on the immediate care for coma patients, BTF estimates that thousands of lives could be saved each year in the U.S.
California Association of Health Facilities (CAHF)
2201 K Street
Sacramento, CA 95853-7004
Phone: (916) 441-6400California Association of Health Facilities (CAHF) is a professional organization that represents long-term care providers, and publishes information about acute care, which provides nursing and physical, occupational and speech therapy. They publish a brochure, ‘Information About Acute Care in a Nursing Facility’, which discusses acute care facilities and what to expect from these facilities.
California Department of Veteran Affairs
1227 O Street
Sacramento, CA 95814
Phone: (800) 324-5966California Department of Veteran Affairs aims to help veterans learn about the state and federal benefits they are entitled to. Benefits could compensate veterans for a service-connected disability, allow them to begin or resume college education, care for their health, train for or find employment, and buy a home.
California Foundation for Independent Living Centers
1234 H Street, Suite 100
Sacramento, CA 95814
Phone: (916) 325-1690The California Foundation for Independent Living Centers (CFILC) provides a comprehensive list of independent living Centers in California. They work in collaboration with the AT Network, Disability Organizing Network, Disabled and Proud, California Assistive Technology Reuse Coalition, and Disability Action Coalition.
Caregiver Action Network
2000 M Street NW, Suite 400
Washington, DC 20036
Phone: (202) 772-5050The mission of the Caregiver Action Network (CAN) is to promote resourcefulness and respect for the more than 65 million family caregivers across the country. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers.
Center for Neuro Skills TBI Resource Guide
The TBI Resource Guide from CNS is a main source of information, services, and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation. New on the web site are an online drugstore and a virtual tour of the CNS brain injury rehab facilities.
Cerebral Palsy Guide
1073 Willa Springs Drive, Suite 2005
Winter Springs, FL 32708
(866) 882-9284Cerebral Palsy Guide is a national support organization dedicated to supporting anyone who has been affected by birth injuries, brain injuries, cerebral palsy, Erb’s palsy, and other developmental disabilities. We strive to provide answers and guidance to ensure that families receive the assistance that they need to help improve their overall quality of life.
Charles Maddock Foundation
http://www.charlesmaddockfoundation.org/
The Charles Maddock Foundation (CMF) supports research in the fields of neurology and neurosurgery to enhance medical knowledge and improve treatments for those with brain injuries. The primary purpose of CMF is to help educate physicians on the most efficient methods of dealing with brain injury and to serve as a resource of knowledge and support for those who have a traumatic brain injury.
Database on Traumatic Brain Injury Educational Resources
1333 Moursund
Houston, TX 77030
Phone: (713) 797-7105This TBI community database contains information about videos and non-published materials such as pamphlets, booklets, and manuals developed around the country, and includes a wide variety of topics.
Deaf and Disabled Telecommunications Program
Phone: (800) 854-7784http://ddtp.cpuc.ca.gov/homepage.aspx
The California Telephone Access Program distributes telecommunications equipment and services for individuals who have functional limitations of hearing, vision, mobility, speech and/or interpretation of information. A person with a speech disability can use STS to make telephone calls, using his or her own voice or voice synthesizer. STS operators serve as “voicers” for users with speech disabilities that have difficulty being understood over the phone. There is no charge to use this service. You only pay for the price of the call. The service also works in reverse, so that anyone may use STS to initiate a call to a person with a speech disability.
Defense and Veterans Brain Injury Center (DVBIC)
1335 East-West Highway, Suite 6-100
Silver Spring, MD 20910
Phone: (800) 870-9244The Defense and Veterans Brain Injury Center (DVBIC) seeks to serve active duty military, their dependents and veterans with traumatic brain injury (TBI) through state-of-the-art medical care, innovative clinical research initiatives and educational programs.
Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury
2345 Crystal Drive, Suite 120
Arlington, Virginia 22202
Phone: (800) 510-7897http://www.dcoe.health.mil/default.aspx
Defense Centers of Excellence (DCOE) leads a collaborative effort toward optimizing psychological health and traumatic brain injury (TBI) treatment for the Department of Defense. The DCOE establishes quality standards for clinical care, education and training, prevention, community outreach, and program excellence.
Disability Rights California
1831 K Street
Sacramento, CA 95811
Phone: (916) 504-5800http://www.disabilityrightsca.org/
Disability Rights California works to bring about fairness and justice for people with disabilities. To reach those goals of fairness and justice, they may file lawsuits on behalf of individuals or groups, investigate charges of abuse and neglect, build peer/self advocacy groups, forge community partnerships, advocate for change in regulations, and provide information to those who may not know about their rights. Disability Rights California has locations in Sacramento, Oakland, Fresno, Los Angeles, and San Diego.
Disability Rights Education and Defense Fund
2212 6th Street
Berkeley, CA 94710
Phone: (510) 644-2555The Disability Rights Education and Defense Fund (DREDF) is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. DREDF’s mission is to advance the rights of people with disabilities through legal advocacy, training, education, public policy and legislative development.
Disabled and Alone: Life Services for the Handicapped, Inc.
352 Park Avenue South
New York, NY 10010
Phone: (212) 532-6740http://www.disabledandalone.org
Disabled and Alone/Life Services for the Handicapped, Inc. (Life Services) believes that no person should have to live his life in loneliness and isolation because of a disability. Life Servicesis a non-profit organization established to help families plan for and implement changes that take place after the death of a caregiver.
Employment Development Department (EDD)
722 Capital Mall
Sacramento, CA 95814
Phone: (916) 653-0707The Employment Development Department (EDD) is one of the largest state departments with employees at hundreds of service locations throughout the state, and have connected millions of job seekers and employers in an effort to build the economy of the Golden State. They offer a wage replacement program for non-work related injuries (i.e. disability).
Epilepsy Foundation of Northern California
155 Montgomery Street, Suite 309
San Francisco, CA 94104
Phone: (415) 677-4011The Epilepsy Foundation of Northern California is a charitable organization leading the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. They direct information, resources and support toward Northern Californians living with epilepsy.
Epilepsy Foundation of America
8301 Professional Place
Landover, MD 20785
Phone: (800) 332-1000The Epilepsy Foundation of America is the national voluntary health agency dedicated solely to the welfare of the people with epilepsy in the U.S. The mission of the Epilepsy Foundation is to stop seizures, find a cure, and overcome the challenges created by epilepsy through efforts including education, advocacy and research.
Fair Employment and Housing Commission
2218 Kausen Drive, Suite 100
Elk Grove, CA 95758
Phone: (916) 478-7251The Fair Employment Housing Commission (FEH) receives and investigates discrimination complaints in its five district offices throughout California. FEH handles employment, housing, public accommodations, hate violence cases, and systemic discrimination cases statewide. In addition, there are three legal offices that prosecute cases. The FEH routinely provides technical assistance to employers, business establishments and housing providers regarding their responsibilities under the law.
Family Caregiver Alliance
785 Market Street, Suite 750
San Francisco, CA 94103
Phone: (415) 434-3388Family Caregiver Alliance (FCA) is a public voice for caregivers. Their information, education, services, research and advocacy support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.
Friends of Californians with Disabilities
Friends of Californians with Disabilities, Inc., is a leader in developing statewide and national partnerships to increase employment and independent living opportunities for people with disabilities. They played a major leadership role in the partnership that created such innovative nationally acclaimed projects as the California Youth Leadership Forum for Students with Disabilities (YLF), the Media Access Office and Awards, and the “Windmills” Disability Awareness Diversity Training Program.
Greyhound Bus
Phone: (800) 752-4841Greyhound is the nation’s primary bus company, and it travels all over California, from Canada to the south side of the Mexican border. Greyhound has services for customers with disabilities, please call for more information.
International Brain Injury Association
http://www.internationalbrain.org/
The International Brain Injury Association is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.
Job Accommodation Network (JAN)
P.O. Box 6080
Morgantown, WV 26506
Phone: (800) 526-7234The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.
Job Seeking Skills for People with Disabilities: A Guide to Success
http://www.gpo.gov/fdsys/pkg/ERIC-ED466056/pdf/ERIC-ED466056.pdf
The Job Seeking Skills Guide is a handbook for service providers to use as a counseling tool, or for individuals with disabilities to use on their own. It provides an overview of the career planning process, including considerations for the applicant with a disability.
Limited Examination and Application Program (LEAP)
801 Capital Mall
Sacramento, CA 95814
Phone: (916) 445-0538 ext. 300The State Personnel Board’s LEAP program helps persons with disabilities secure State Jobs. Department of Rehabilitation counselors can certify clients, help them fill out the application, and help clients with the examination and hiring process.
Medicare Information
Phone: (800) 633-4227
Call for more information on eligibility information. Medicare pays for doctors, ambulance trips, and X rays, but will not pay for dentists, hearing aids, nor glasses (except for cataracts and eye exams). Medicare will also pay for preventative care, such as mammograms and prenatal care.
NAMI Veterans Resource Center
3803 N. Fairfax Drive, Suite 100
Arlington,VA 22203
Phone: (703) 524-7600The National Alliance on Mental Illness (NAMI) Veterans Resource Center provides resources for veterans and active duty military members, as well as their families, friends, and advocates on topics related to mental health, such as Posttraumatic Stress Disorder (PTSD), health benefits and eligibility, and Traumatic Brain Injury (TBI).
National Association of State Head Injury Administrators
P.O. Box 878
Waitsfield, Vermont 05673
Phone: (802) 498-3349The National Association of State Head Injury Administrators assists state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families. They also deal with brain injury policy, program, and service resources for state employees and others interested in state government.
National Brain Tumor Society
22 Battery Street, Suite 612
San Francisco, CA 94111
Phone: (800) 934-CUREThe National Brain Tumor Society is committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels. The website also has a directory of brain tumor related support groups.
National Dissemination Center for Children with Disabilities
P.O. Box 1492
Washington, DC 20013
Phone: (800) 695-0285The National Dissemination Center for Children with Disabilities is devoted to providing information on disabilities for families, educators, and other professionals. Special focus is on children and youth (birth to age 22). Services include personal responses to specific questions, publications, and referrals to other disability organizations.
National Easter Seal Society
230 West Monroe, Suite 1800
Chicago, IL 60606
Phone: (312) 726-6200Easter Seals provide educational evaluation services, technological assistance, speech and language therapy, vocational evaluation, occupational therapy and training, psychosocial evaluation and counseling, and recreational and social services for people with disabilities. Call or visit the website for the Easter Seals office near you.
National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424The mission of the National Institute of Neurological Disorders and Stroke is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
National Institute on Disability and Rehabilitation Research (NIDRR)- Office of Special Education and Rehabilitative Services
400 Maryland Avenue, S.W.
Washington, DC 20202
Phone: (202) 245-7316www.ed.gov/about/offices/list/osers/nidrr/
The National Institute on Disability and Rehabilitation Research (NIDRR)funds research in the field of rehabilitation. They have an emphasis on employment outcomes, health and function, technology for access and function, independent living and community integration, associated disability research areas, knowledge dissemination and utilization, ADA technical assistance projects, and capacity building for rehabilitation research and training.
National Intrepid Center of Excellence
4860 South Palmer Road
Bethesda, MD 20889-5649
Phone: (301) 319-3600http://www.nicoe.capmed.mil/About%20Us/SitePages/Home.aspx
The mission of the National Intrepid Center of Excellence (NICoE) is to be a leader in advancing TBI and psychological health treatment, research and education. This overarching mission is accomplished through three primary categories of activity: Research, Clinical, and Education.
National Organization on Disability
910 Sixteenth Street, NW, Suite 600
Washington, DC 20006
Phone: (202) 293-5960The National Organization on Disability (NOD) promotes the full participation of people with disabilities in all aspects of life. Today, NOD focuses on increasing employment opportunities for the 79 percent of working-age Americans with disabilities who are not employed.
National Rehabilitation Association
633 South Washington Street
Alexandria, VA 22314
Phone: (703) 836-0850The National Rehabilitation Association (NRA) is a member organization that promotes ethical and state of the art practice in rehabilitation with the goal of the personal and economic independence of persons with disabilities.
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard, Suite 202
Lanham, MD 20706
Phone: (301) 459-4263The National Rehabilitation Information Center is funded by the National Institute on Disability and Research (NIDRR) and it serves anyone, professional or client, who is interested in disability and rehabilitation. NIDRR provides 60000 disability-related records regarding literature, organizations, timely information, and research.
National Resource Center for Traumatic Brain Injury- Department of Physical Medicine and Rehabilitation
P.O. Box 980542
Richmond, VA 93298
Phone: (804) 828-9055The National Resource Center for Traumatic Brain Injury (NRCTBI) is produced by the Virginia Commonwealth University. The website includes guides for survivors about families, friends, and caregivers, living and working productively, and rehabilitation providers. NRCTBI provides TBI frequently asked questions (FAQ’s) and a directory of experts.
National Resource Directory
The National Resource Directory provides access to services and resources at the national, state and local levels that support recovery, rehabilitation and community reintegration. These resources are specifically for Wounded Warriors, service members, veterans, and their family and caregivers who support them.
Neurobehavioral Cognitive Services (NCS)
450 S. Porter Rd
Dixon, CA 95620
phone: 707-678-7394
fax: 707-678-7398Neurobehavioral Cognitive Services (N.C.S.) is a Northern California leader in post-acute rehabilitation. N.C.S. is a highly successful and highly regarded residential program for community-based care for people with brain injury, who’s founders have been working together since 1989. Our diagnostic and treatment methods are second to none.
NeuroRestorative
Phone: (800) 743-6802http://www.neurorestorative.com/
As a pioneer in post-acute services, NeuroRestorative sets the pace for community-based care for people with brain injury and evolved into a nationally recognized center of excellence in treating post-acute neurological trauma.
Neurotrauma Law Nexus
This Neurotrauma Law Nexus is provided as a resource for people with Brain Injury (BI) and Spinal Cord Injury (SCI), family members, health care providers, social workers, and all other interested individuals whose lives and experiences are affected by BI, SCI, or other complex neurological events. This site is an information resource for understanding the legal system’s involvement in brain and spinal cord injury cases. The web site discusses the role of the neurolawyer, understanding brain and spinal cord injury, medico-legal issues, and glossary of terms. It is provided through the Law Offices of Fick & May.
North American Brain Injury Society
The North American Brain Injury Society was created specifically to address the needs of multidisciplinary professionals dedicated to brain injury, providing education programs, scientific updates and a platform for communication and professional exchange. NABIS welcomes the opportunity to work with other brain injury groups to address the key issues for professionals in North America.
Parrot Software/Brain Train
Parrot Software provides treatment for aphasia and brain injury by providing tools for communication, memory, attention, speech and cognition.
Pediatric Brain Injury Foundation
The Pediatric Brain Injury Foundation provides knowledge and support to families and caregivers of children with brain injury, and they advocate for those children.
Planning and Execution Assistant Trainer (PEAT)
650 Castro Street, Suite 120-197
Mountain View, CA 94041
Phone: (888) 224-7328PEAT is an Android smartphone or tablet application that provides cueing and scheduling assistance for individuals with memory, attention, and cognitive disorders. PEAT users include patients with traumatic brain injury, stroke, hypoxia, neurodegenerative conditions including Autism, MS, Alzheimer’s disease and attention deficit and hyperactivity disorder (ADHD).
Project Hired
1270 Franklin Square
Santa Clara, CA 95050Project Hired (Helping Industry Recruit Employees with Disabilities) assists individuals with disabilities to secure jobs appropriate to their qualifications and career goals. They also maintain a range of services for job placement and career development.
Social Security Disability Resource Center
The Social Security Disability Resource Center inform readers about how the Social Security Disability and SSI Disability process works from start to finish. This includes what to expect before, during, and after a disability application has been processed, common mistakes that need to be avoided, and what to do and how to react in specific situations (for example, receiving notices of denial, obtaining the status of the claim at different points, providing needed evidence, and undergoing a disability interview with a Social Security Claims Representative).
Stiggy’s Dogs
Stiggy’s Dogs is a non-profit organization dedicated to the support of Military Veterans suffering from Post Traumatic Stress Disorder and Traumatic Brain Injury. They offer another way to heal through Psychiatric Therapy Dogs. The dogs are rescued and trained specifically for each Veteran. By uniting these Military Heroes and dogs, they are “Rescuing One to Rescue Another.”
The American Association of People with Disabilities
The American Association of People with Disabilities is the nation’s largest disability rights organization. They promote equal opportunity, economic power, independent living, and political participation for people with disabilities. Members, including people with disabilities and their family, friends, and supporters, represent a powerful force for change.
The American Occupational Therapy Association
4720 Montgomery Lane
P.O. Box 31220
Bethesda, MD 20824
Phone: (301) 652-6611The American Occupational Therapy Association (AOTA) is the national professional association established to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.
The Brain Aneurysm Foundation
269 Hanover Street
Hanover, MA 02339
Phone: (781) 826-5556The Brain Aneurysm Foundation seeks to provide support and educational materials to the medical community, survivors, family members, friends and the general public regarding the facts, treatment options, and recovery process for brain aneurysms. With the help of the medical community, remain steadfast and earnest in the pursuit of brain aneurysm research that can directly benefit those affected.
The Brain Injury Recovery Network
840 Central Avenue
Carlisle, OH 45005
Phone: (877) 810-2100The Brain Injury Recovery Network is dedicated to helping victims and families of brain and other serious injuries. They do not give medical advice or suggest particular treatments for those with brain injuries. Instead, they try to inform readers of some of the possible options so that they can weigh those options with the specifics of the situation, and participate with the medical team to make the best decisions they can at the time.
The Brain Tumor Foundation for Children
6065 Roswell Road NE, Suite 505
Atlanta, GA 30328
Phone: (770) 458-5554The mission of the Brain Tumor Foundation for Children is to provide financial assistance, social support, and information for families of children with brain and spinal cord tumors. They fund research projects that improve treatment options and search for a cure, as well as raise public awareness of the disease and advocate on behalf of children who are affected.
The Cal State University: Working for California
http://www.calstate.edu/search_find/campus.shtml
On this website is a list of all of the 23 California State University colleges. Many students with disabilities attend these schools successfully. For extra support while attending these schools, search for a specific campus’s Disabled Students Programs & Services (DSPS).
The Center for Outcome Measurement in Brain Injury (COMBI)
The COMBI is an online resource for individuals needing detailed information in regards to outcome and assessment measures for brain injuries. The COMBI is a collaborative project of thirteen brain injury centers across the United States, covering detailed information on 26 different instruments.
The Journey Home- Center of Excellence for Medical Multimedia
Security Drive-Building 8110
USAFA, CO 80840http://www.traumaticbraininjuryatoz.org/
The Journey Home provides an informative and sensitive exploration of Traumatic Brain Injury (TBI), including information for patients, family members, and caregivers. Topics include types and symptoms of brain injury, TBI treatment and recovery, and helpful insights about the potential long-term effects of brain injury.
The National Spinal Cord Injury Association (NSCIA)
75-20 Astoria Blvd
Jackson Heights, NY 11370
Phone: (718) 803-3782The mission of the National Spinal Cord Injury Association is to improve the quality of life of all people living with a spinal cord injury. They provide active-lifestyle information, peer support and advocacy that empower individuals to achieve their highest potential in all facets of life.
TIRR Foundation
http://www.tirrfoundation.org/
The TIRR Foundation seeks to improve the recovery, health, and quality of life for people who have sustained a spinal cord or brain injury by funding innovative research to find a cure and by fostering programs that advance rehabilitative medicine. TIRR Foundation is advancing medical science, improving care, and enhancing lives.
Traumatic Brain Injury National Data Center
The Traumatic Brain Injury National Data Center includes an introduction and links to the model systems, publications, current research, and a Facts and Figures newsletter. The Traumatic Brain Injury Model System (TBIMS) program was created to demonstrate the benefits of a coordinated system of neurotrauma and rehabilitation care, and to conduct innovative research on all aspects of care for those who sustain traumatic brain injuries. Each Center systematically collects important data about each individual included and sends this information to the TBI National Data Center.
Traumatic Brain Injury Resource Directory (TBIRD)
The Traumatic Brain Injury Resource Diretory (TBIRD) is an online directory of resources intended for use by persons with traumatic brain injury in Northern California. It is produced by the Rehabilitation Research Center at Santa Clara Valley Medical Center, and funded by the National Institute of Disability and Rehabilitation Research and Firedoll foundation.
Traumatic Brain Injury Support Groups
http://www.bcftbi.org/tbi-resources/support-groups.asp
The Betty Clooney Center lists traumatic brain injury support groups throughout the entire state of California, as well as some in other states. They also list Internet TBI support groups. Support groups help people with brain injury and/or their caregivers and family be around others who share similar experiences.
Traumatic Brain Injury Survival Guide
The Traumatic Brain Injury Survival Guide is an online TBI survival guidebook written by Glen Johnson, Ph.D., and clinical neuropsychologist from Michigan. Easy to read chapters include common indicators of a head injury, understanding how the brain works, coping with common problems, dealing with doctors, emotional stages of recovery, and returning to school.
United States Brain Injury Alliance
The mission of the United States Brain Injury Alliance is to engage the community in preventing brain injury and improving lives. They value integrity, excellence, and impact- in order to make a difference for those with brain injury.
University of California
http://admission.universityofcalifornia.edu/campuses/
On this website is a list of all of the 9 University of California colleges. Many students with disabilities attend these schools successfully. For extra support while attending these schools, search for a specific campus’s Disabled Students Programs & Services (DSPS).
U.S. Department of Health Resources and Services Administration (HRSA) TBI Program
http://www.hhs.gov/asl/testify/2012/03/t20120319a.html
HRSA’s Traumatic Brain Injury Program was established to ensure that individuals with TBI and their families have access to appropriate, adequate care to support recovery, maximize independence, and promote reintegration. The Traumatic Brain Injury Grant Program funds the development and implementation of statewide systems that ensure access to comprehensive and coordinated TBI services including transitional services, rehabilitation, education and employment, and long-term community support.
U.S. Department of Veterans Affairs – Vocational Rehabilitation and Employment (VR&E)
Veterans may receive help with job training, employment accommodations, resume development, and job seeking skills coaching. Other services may be provided to assist Veterans in starting their own businesses or independent living services for those who are severely disabled and unable to work in traditional employment.
World Institute on Disability (WID)
3075 Adeline Street, Suite 280
Berkeley, CA 94703
Phone: (510) 225-6400The World Institute on Disability (WID) eliminates barriers to full social integration and increase employment, economic security and health care for persons with disabilities. WID creates innovative programs and tools, conducts research and training, and provides technical assistance.
While You are Waiting
While You are Waiting is the work of those whose lives have been changed by brain injury. This web page is directed to individuals waiting while someone is in a coma. It provides information about brain injury, the ICU guide, grief process and testimonials, frequently asked questions about prognosis, legal issues, what to expect at discharge, support, and resources.
The following resources are information based and available online nationwide. Thanks to Patricia from Public Health Corps for sending in the tip!
Disability.gov: Guide to Disability Benefits
Medicare & Social Security: Benefits for Disabled Individuals
Social Security Administration: Extra Help with Medicare Prescription Drug Plan Costs
Disability.gov’s Guide to Transportation
Department of Housing and Urban Development: Buying a Home
Closetbox.me: Guide to Moving for the Disabled
Disability.gov: Home Modifications to Promote Independent Living
Redcross.org: Home Safety for People with Disabilities
Improvenet.com: Fire Safety & Disabilities Guide
HomeAdvisor.com: Home Accommodation Cost Guide for the Disabled
Upon exploring your sight, I found that our post acute program was not listed in the “Statewide Brain Injury & Disability & Research” page. Neurobehavioral Cognitive Services (N.C.S.) is a Northern California leader in post-acute rehabilitation. N.C.S. is a highly successful and highly regarded residential program for community-based care for people with brain injury, who’s founders have been working together since 1989. Our diagnostic and treatment methods are second to none.